We have faced the uncertainty, frustration, and heartbreak that come with watching our kids transform from bright, joyful individuals into children struggling with extreme anxiety, rage, OCD, and other severe symptoms. Many of us have spent years seeking answers, only to be met with misdiagnoses, endless medications, and mounting medical bills.

We formed NYPANS to unite our voices, determined to fight for change and ensure that every family dealing with this illness has access to the care and support they need.

Children with PANS/PANDAS might suddenly exhibit psychiatric symptoms, like OCD, anxiety, ADHD, extreme mood swings, or even severe depression and suicidality, often acting out in ways that seem drastically out of character. They are often misdiagnosed as psychiatric patients and their symptoms do not respond to regular medications and therapies. Many kids experience significant improvement when the immune system is properly managed and some even recover completely.

Our Advocacy 

Together, we are pushing New York State legislators to hold insurance companies accountable for providing coverage for PANS/PANDAS treatments. Our children deserve to receive the treatments that can help them regain their lives and the financial burden should not fall solely on families.

We are advocating for a future where no family has to choose between their child’s health and their financial security. We won’t stop until every child with PANS/PANDAS in New York gets the care they deserve.

For more information or to join our cause, please reach out to us info@nypans.org. Together, we can make a difference.