The PACE Foundation is a United States nonprofit working to improve diagnosis, treatment and quality of life for children with pediatric autoimmune neurological disorders. It partners with university medical schools to establish PANS and PANDAS clinics.
What this letter argues
- Delays or denials of care can permanently affect a child’s health, education and future.
- The bill would provide clarity for insurers as well as protection for families.
- PACE has partnered with leading university medical schools to establish PANS and PANDAS clinics and Centers of Excellence across the United States and Canada.
The letter in full
Submitted by Paul Ryan, President. Published exactly as submitted.
Attention: New York State Assembly Insurance Committee and Assemblyman Weprin
The PACE Foundation supports NYS A9659 because children with PANS/PANDAS deserve access to medically necessary treatment. Delays or denials of care can permanently impact a child’s health, education, and future. NYS A9659 would provide clarity for insurers and critical protection for New York families.
The PACE Foundation is a leading US non-profit organization dedicated to improving the diagnosis, treatment and quality of life for children with Pediatric Autoimmune Neurological Disorders.
Over the past few years, the PACE Foundation has developed and/or partnered with leading university medical schools, to establish PANS/PANDAS Clinics and Centers of Excellence to treat children affected by these disorders in the US and Canada.
We are submitting PACE’s written testimony to offer our support of Assembly Bill NYS A9659.
Thank you for the opportunity to participate in the legislative process.
The bills this letter supports
This letter supports A9659, the Assembly bill. The current bills are A9659A, sponsored by Assemblymember Michael Cashman and now in the Assembly Insurance Committee, and S10208, sponsored by Senator Pete Harckham and now in the Senate Insurance Committee.
Send a letter to your own legislators or read more about the bills.