Share Your Story

NYPANS · Family voices

Your story.
A stronger voice.

Help lawmakers understand what PANS/PANDAS means for a family. Share what you have lived through, what care has cost, and what you wish people knew.

Record a video →Write your story ↓

Your experience.
Your own words.

Record your video →

Up to 90 seconds · Review before you send
You choose how it is sharedEvery submission is reviewedPhotos and videos are optional

Share your story

A space for your story.

Your experience can help New York lawmakers understand what families face when insurance will not cover PANS and PANDAS treatment. Share only what feels comfortable. Nothing is published or shared until the NYPANS team has reviewed it, and we will always follow your choice. Fields marked with an asterisk are required.

Every story supports A9659A and S10208, and any future legislation requiring insurance to cover PANS/PANDAS treatment.

1You shareWrite, record, or both. A few sentences is enough.
2We reviewOur team reads every submission and may reach out with a question.
3Your choiceShared publicly, with legislators only, or kept private.

About you

Your email is used only to contact you about your submission and is never published.
Lets us share your story with your own State Senator and Assemblymember.
We never show your email or ZIP code.

Your story

Share your experience in your own words. Include only the details you feel comfortable sharing.
A few words to introduce your experience. This becomes the headline if your story is published.
Not sure where to start? Any of these can help:
  • What changed, and how suddenly?
  • How long did it take to get a diagnosis?
  • What has treatment cost your family?
  • What has insurance covered, denied, or delayed?
  • What would coverage have meant for your family?

A few quick facts Optional

These help us show lawmakers the pattern across many families. They are never published alongside your name.

Photo & video

Both optional. A photo or short video makes a story much harder to set aside.
Drag & Drop Files, Choose Files to Upload
JPG or PNG
Record on your phone or computer
MP4 or MOV, up to 90 seconds (250 MB max).

Your face is optional. A voice over a photo, your hands, or a child's drawing tells the story just as well. Include other people only with their permission, and a child only with a parent or guardian's permission.

How may we share it?

Choose what feels right. You can change your mind at any time.

Changed your mind later? Email nypansadvocacy@gmail.com and we will remove your story.

Why your video matters

Behind every policy
is a family.

A short video lets people hear the experience behind the words. Your voice can help neighbors, supporters, and lawmakers understand why access to care matters, and why families are asking for change.

01 / UNDERSTANDING

Make it personal.

Describe a moment that shows how your family’s everyday life has been affected.

02 / CONNECTION

Help others feel seen.

Your experience may help another family recognize that they are not alone.

03 / ADVOCACY

Give the cause a voice.

Help lawmakers understand what insurance coverage would mean for your family.

Record here. Share when you’re ready.

A few words. In your own voice.

You don’t need a video ready to go. Open the camera, record up to 90 seconds, and review your message before sending it with your story. Already have a video on your phone? Choose Upload a video instead.

01Record on the spot

Let your voice be heard.

Find a quiet place and speak naturally. One experience or one moment is enough.

  1. Tap Record now in the form to open the recorder.
  2. Allow camera and microphone access when your browser asks.
  3. Press the record control to begin your message.
Record a video →
02You’re in control

Review it. Then send.

Take a moment to make sure you’re comfortable with what you’ve shared.

  1. Review your recording. Record it again if you’d like.
  2. Choose Use Video to attach it to your form.
  3. Finish your title and story, choose how we may share it, and select Submit my story for review.

Not sure where to start?

Pick one question. Speak as if you were talking to a lawmaker who wants to understand.

  • What changed for your child, and how suddenly?
  • What has treatment cost your family?
  • What has insurance covered, denied, or delayed?
  • What would coverage mean for your family?

Recording is optional. You can submit a written story on its own. Include another person, especially a child, only with the appropriate permission. If your camera won’t open, try allowing camera and microphone access in your browser settings, or upload a video you already have.

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