NYPANS · Family voices
Your story.
A stronger voice.
Help others understand what PANS/PANDAS means for a family. Share what you have lived through, what has helped, and what you wish people knew.
Your experience.
Your own words.
Record your video →
Up to 90 seconds · Review before you send
Why your video matters
Behind every policy
is a family.
A short video lets people hear the experience behind the words. Your voice can help neighbors, supporters, and lawmakers understand why access to care matters—and why families are asking for change.
Make it personal.
Describe a moment that shows how your family’s everyday life has been affected.
Help others feel seen.
Your experience may help another family recognize that they are not alone.
Give the cause a voice.
Help people understand what support and access to care would mean for your family.
Record here. Share when you’re ready.
A few words. In your own voice.
You don’t need a video ready to go. Open the camera, record up to 90 seconds, and review your message before sending it with your story.
Let your voice be heard.
Find a quiet place and speak naturally. One experience or one moment is enough.
- Tap Record a video below to open the recorder.
- Allow camera and microphone access when your browser asks.
- Press the record control to begin your message.
Review it. Then send.
Take a moment to make sure you’re comfortable with what you’ve shared.
- Review your recording. Record it again if you’d like.
- Choose Use Video to attach it to your form.
- Finish your title and story, choose public or private, and select Submit story for review.
Not sure where to start?
Pick one question. Speak as if you were talking to someone who wants to understand.
- What do you wish people understood about your family’s experience?
- How have barriers to care affected your daily life?
- What would better access to care mean for your family?
Recording is optional. You can submit a written story on its own. Include another person, especially a child, only with the appropriate permission. If your camera won’t open, try allowing camera and microphone access in your browser settings, or continue with your written story.
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